For more than seven decades, we have dedicated our service to providing excellent resources to the people of New York about hemophilia. Through coordination, fundraising, community service, and education, we remain one of the trusted partners of the bleeding disorders community.
Our mission is to provide information, education, advocacy, and direct assistance to and on behalf of people with bleeding disorders and to encourage and support scientific research to improve medical treatments and develop cures for hemophilia and related disorders.
If you or a loved one lives with hemophilia and would like more information about any of our services, please contact us at 212.682.5510.
What Is Hemophilia?
Hemophilia makes it difficult for a person’s blood to clot. Even minor injuries can become dangerous since they may not stop bleeding. Genetic factors primarily cause the disorder to be passed down from parents to children.
Some of the symptoms of hemophilia include:
- Frequent nosebleeds
- Blood in urine or stool
- Unusual, heavy menstrual bleeding
- Easy bruising
- Prolonged bleeding from cuts
- Painful and swollen joints
Tens of thousands of people in the U.S. live with hemophilia. A doctor will only diagnose hemophilia after a blood test confirms a person lacks sufficient blood-clotting proteins. People with hemophilia are more prone to complications from surgery, accidents, and even bruising because they risk having heavy internal and external bleeding.
Care Coordination and Healthcare Partnerships
As one of the primary resources for hemophilia information in New York, we work closely with the people involved in the bleeding disorder community, often serving as a point of contact for vital education.
We provide resources for:
- People with hemophilia – All of our efforts have one thing in mind, to provide direct aid and vital resources to people living with hemophilia. Our important education material helps to keep them up to date on new treatments and programs.
- Caregivers and social workers – Many times, caregivers and social workers bear a heavy burden of advocating for the people they care for. We work to help ease that burden by providing extensive resources to help their patients get the additional care they need.
- Donors – Without donors, our efforts would be limited. Through fundraising, blood donation, and other advocacy events, we help the local community learn more about hemophilia and help them provide for those in need.
Researchers – Advancing the solution and care available to people with hemophilia can only happen through extensive research. Our grants provide healthcare professionals with the financing needed to continue making breakthroughs.
Fundraising and Grants
Finding new ways to treat and help people with hemophilia is at the root of our organization. We proudly serve the 14 southeastern counties of New York state through dedicated fundraising and research grant efforts.
Our fundraising and sponsorship opportunities drive our ability to provide people with bleeding disorders with important education material and health reminders about the ever-changing healthcare landscape. We can drive awareness about this critical condition by interacting with our local community.
Additionally, we value the research and advancements made by healthcare professionals to provide better solutions for people with bleeding disorders. We have provided more than $2.5 million to hard-working researchers worldwide.
Serving Our Community
Helping people with hemophilia starts with advocacy and awareness. Using blood drives, educational events, and sponsorship opportunities, we know that more people will learn about how to assist the bleeding disorder community.
We know the burden of healthcare can be confusing and financially challenging. With financial aid and other services, we work to provide direct assistance to people with hemophilia who need it.
Providing education and advocacy remains the cornerstone of our mission. Our quarterly newsletter and regular events bring the community together to shed light on an often shadowed disorder.
Hemophilia treatments and other healthcare initiatives are constantly changing, often without warning or notice to the patients who rely on the industry. Our resources help organize valuable information for the bleeding disorder community to drive forward aid and solutions.
Contact us at 212.682.5510 for more information about hemophilia or any of our events, fundraising, or grant opportunities.