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State Advocacy

State Advocacy

As a trusted partner and resource to the bleeding disorder community in the fourteen southeastern counties of New York, we know how important our programs are. We work closely with many organizations across the state to ensure that people with hemophilia and other bleeding disorders gain access to the information and treatment they need.

Other hemophilia advocacy groups in New York include:

  • The Bleeding Disorders Association of Northeastern New York
  • Bleeding Disorders Association of the Southern Tier
  • Mary M. Gooley Hemophilia Center, Inc.
  • New York City Hemophilia Chapter
  • WNY Bloodcare
  • Bleeding Disorders Advocacy Network

Together with these other regional and state advocacy organizations, we can continue to bring high-quality information and crucial financial assistance to people with bleeding disorders.

Contact a group in your area today or call us at 212.682.5510 to learn more.

New York Hemophilia Treatment

At-Home treatment can be a viable option for many people with hemophilia but may not be suitable for everyone. Some treatments are too advanced to administer at home, while some people may need the support of other medical specialists.

Hemophilia treatment centers (HTCs) provide valuable treatment and a network of physicians for people with bleeding disorders. Not only can patients receive the clotting treatment that can prevent serious complications, but they can also learn more about how their condition will affect their daily life and how to manage it.

The HTCs we partner with are:

New York Blood Center (NYBC)

For over 40 years, New York Blood Center’s Pharmacy Services has dispensed billions of units of factor medication and offers the experience, knowledge and reliability necessary to help patients manage their medications and infusion supplies. With their professional pharmacy staff and a broad inventory of factor medications to meet patient needs, they work in tandem with each HTC they serve to provide quality service and support.

National Hemophilia Resources

More than 3,000 people in New York are treated for hemophilia annually, but that is only a small portion of the people in the country who have a bleeding disorder. An estimated 33,000 people live with hemophilia in the U.S., which does not include people with other bleeding disorders.

National advocates help push resources and funding for people living with bleeding disorders around the nation. These advocates include:

  • The Coalition for Hemophilia B
  • Hemophilia Federation of America
  • National Hemophilia Foundation
  • Everylife Foundation
  • National Organization for Rare Disorders

As we continue to spread awareness and educate people about hemophilia and other bleeding disorders, more researchers gain the funding they need to continue discovering breakthroughs in safe and effective treatment.

Become a Member of the Hemophilia Association of New York Today

When you register with the Hemophilia Association of New York, you gain access to exclusive member benefits. Our quarterly newsletter provides essential information for people with bleeding disorders, including treatment options, insurance coverage, and tips for managing incidents.

Eligible members can also receive direct financial aid to access important clotting protein and other medical treatments. Don’t skip a potentially life-saving treatment because of your financial situation. Find out how we can help today.

Make a Donation

As a not-for-profit healthcare organization, we help raise funds and spread awareness for people with hemophilia. All donations we receive go directly to developing better resources and sponsoring people in need as they receive medical treatment.

Your donation can help someone with a bleeding disorder live a better life. New bleeding disorder treatments are often expensive and inaccessible to people managing a bleeding disorder. We use the donations we receive to support the bleeding disorder community of New York directly.

Contact Us

Ready to make a donation or register today? Or do you still have questions about our programs? We would love to help. Give us a call at 212.682.5510 today to learn more.