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Privacy Policy

Privacy Policy

Effective Date: September 2025

The Hemophilia Association of New York (“HANY,” “we,” “our,” or “us”) respects your privacy and is committed to protecting the personal information you share with us. This Privacy Policy explains what information we collect, how we use it, and the choices you have regarding your information.

1. Information We Collect

We may collect the following types of information:

  • Personal Information: such as your name, address, phone number, email address, and date of birth.

  • Health-Related Information: limited information you provide when requesting support, resources, or program participation.

  • Communication Preferences: including your consent to receive SMS text messages, emails, or phone calls.

  • Website Usage Information: such as IP address, browser type, and pages visited (collected via cookies or similar technologies).

2. How We Use Personal Information

We use the information collected to:

  • Provide services, programs, and resources to individuals and families affected by bleeding disorders.

  • Communicate important updates, event invitations, reminders, and organizational news.

  • Respond to inquiries, provide assistance, and improve our services.

  • Comply with legal or regulatory obligations.

3. SMS/Text Messaging

  • By providing your phone number and opting in, you consent to receive SMS/text messages from HANY.

  • These messages may include event reminders, health education updates, donation opportunities, or program information.

  • SMS consent is not shared with third parties or affiliates.

  • Message frequency may vary. Standard message and data rates may apply.

  • You may opt out at any time by replying STOP to any message, or reply HELP for assistance.

4. Sharing of Information

We respect your privacy. Personal information is never sold. We may share information only in the following circumstances:

  • With service providers and vendors who assist us in operating our website, events, and communication tools (and who are bound by confidentiality agreements).

  • With healthcare or community partners, but only when you give consent.

  • When required by law, regulation, or court order.

5. Your Choices

  • You may update or correct your personal information by contacting us at [insert contact email].

  • You may opt out of SMS messages by replying STOP at any time.

  • You may unsubscribe from email communications by clicking the “unsubscribe” link in our emails.

6. Security

We take appropriate administrative, technical, and physical measures to protect your personal information from unauthorized access, disclosure, alteration, or destruction.

7. Links to Other Websites

Our website may contain links to third-party websites. We are not responsible for the privacy practices of these websites.

8. Updates to this Policy

We may update this Privacy Policy from time to time. Any changes will be posted on this page with an updated effective date.

9. Contact Us

If you have questions or concerns about this Privacy Policy or your personal information, please contact us:

Hemophilia Association of New York
131 W 33rd St, Suite 11D
New York, NY 10001
Email: Admin@hemophiliany.com
Phone: (212) 682-5510