American Thrombosis and Hemostasis Network (ATHN)

The Foundation for Women & Girls with Blood Disorders (FWGBD) was launched in 2010 to serve as a single site source where physicians and healthcare providers can obtain information and education.

FWGBD's mission is to ensure all women and adolescent girls with blood disorders are correctly diagnosed and optimally treated and managed at every life stage.


HemDifferently aims to open an honest conversation around the topic of gene therapy research. What you can expect from this site, or any of the other HemDifferently resources, is accurate and straightforward information.

Spark Therapeutics

Spark Therapeutics challenges the inevitability of genetic disease by discovering, developing, and delivering potential treatments in ways unimaginable—until now. We have built a fully integrated company, combining our proprietary adeno-associated viral (AAV) gene therapy platform with excellence in R&D, manufacturing, and commercial operations. Find out more about how we strive to turn genes into medicines for patients with inherited diseases, including inherited retinal diseases (IRDs), liver-directed diseases such as hemophilia, and neurodegenerative diseases.

Hemophilia Federation of America (HFA)

HFA member organizations across the country utilize HFA’s collaborative federation to strengthen community support and awareness, develop effective local organizations, and implement valuable community-based programs. These programs include a wide range of outreach initiatives and broad-based support for families with bleeding disorders.

World Foundation of Hemophilia

For over 50 years, the World Federation of Hemophilia (WFH) has worked globally to close the gap in care and to achieve treatment for all people, both  menand women, with hemophilia and other inherited bleeding disorders, no matter where they live.

National Hemophilia Foundation

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy, and research

The Coalition of Hemophilia B

The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.

National Council on Aging

Help people aged 60+ meet the challenges of aging and partners with nonprofit organizations, government, and businesses to provide innovative community programs and services, online help, and advocacy.

National Institutes of Health

The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency making important discoveries that improve health and save lives.

NIH SeniorHealth and Exercise Site 

NIHSeniorHealth helps seniors find answers to their medical questions from the comfort of their own homes thanks to this new and innovative online resource.

NIH Senior Health Exercise

Disability Benefits Help

Disability Benefits Help is an independent organization dedicated to helping people of all ages learn more about the Social Security application process, receive disability benefits, or stay on benefits after approval.

Staff can be reached at or you could ask a question in their forum: