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X-WR-CALDESC:Events for Hemophilia Association of New York
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UID:577-1714926600-1714933800@hemophiliany.com
SUMMARY:Gene Therapy in Hemophilia
DESCRIPTION:Join us for a presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on the gene therapy journey. Findings from a clinical trial will be shared and what they could mean for you. Learn how to get started\, what questions to ask your doctor\, and hear one patient’s experience. \nThis event is for those ages 17+ with severe or moderate Hemophilia and their significant other or parent. \nFood and refreshments will be provided. Space is limited! \nRegistration deadline: Monday\, April 29\, 2024 \n>>>>Register Today !!!<<<<
URL:https://hemophiliany.com/event/gene-therapy-in-hemophilia/
LOCATION:Jade Eatery\, 1 Station Square Suite 2\, Queens\, NY\, 11375\, United States
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DTSTART;VALUE=DATE:20240517
DTEND;VALUE=DATE:20240520
DTSTAMP:20260423T090928
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UID:501-1715904000-1716163199@hemophiliany.com
SUMMARY:Blood Brotherhood Weekend Retreat
DESCRIPTION:Enjoy a weekend retreat featuring educational sessions\, activities\, and time to share your experiences and connect with other community members. This event is for men 18+ living with rare bleeding disorders registered with HANY.  \nSpace is limited!!! \n>>>Register Today !!!<<<
URL:https://hemophiliany.com/event/blood-brotherhood-retreat/
LOCATION:Tarrytown House Estate on The Hudson\, 49 E Sunnyside Ln\, Tarrytown\, NY\, 10591\, United States
ORGANIZER;CN="Lina Garzon":MAILTO:lgarzon@hemophiliany.com
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