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X-WR-CALNAME:Hemophilia Association of New York
X-ORIGINAL-URL:https://hemophiliany.com
X-WR-CALDESC:Events for Hemophilia Association of New York
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T180000
DTEND;TZID=America/New_York:20250424T200000
DTSTAMP:20260423T150539
CREATED:20250403T133420Z
LAST-MODIFIED:20250403T133533Z
UID:1338-1745517600-1745524800@hemophiliany.com
SUMMARY:WOMEN’S HEALTH INITIATIVE
DESCRIPTION:WE ARE EXCITED TO INVITE YOU TO THE FIRST\nEVENT IN OUR WOMEN’S HEALTH SERIES! \n \n  \nREGISTER HERE !!!\n  \n 
URL:https://hemophiliany.com/event/womens-health-initiative/
LOCATION:Spin New York Midtown\, 1626 Broadway\, New York\, NY\, 10019\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250417T180000
DTEND;TZID=America/New_York:20250417T200000
DTSTAMP:20260423T150539
CREATED:20250307T231751Z
LAST-MODIFIED:20250307T231751Z
UID:1318-1744912800-1744920000@hemophiliany.com
SUMMARY:Alhemo Virtual Q+A Virtual Event 4/17/2025
DESCRIPTION: The HANY team is excited to invite you to join us on April 17th\, 2025 for a virtual educational presentation! \n \nThis event will be a Virtual Q+A with Novo Nordisk Representative Martha Boria Negron\, regarding Alhemo. Alhemo is the first ever subcutaneous pen approved for treatment in those affected by Hemophilia A or B WITH inhibitors. \nWe urge you to participate in this unique opportunity to bring your questions directly to Martha!\n \nThis program is for any patient\, caregiver\, or family affected by Hemophilia A or B WITH inhibitors.\n  \n \n  \nREGISTER HERE !!!
URL:https://hemophiliany.com/event/alhemo-virtual-qa-virtual-event-4-17-2025/
LOCATION:Virtual  – Online
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250403T180000
DTEND;TZID=America/New_York:20250403T200000
DTSTAMP:20260423T150539
CREATED:20250305T164304Z
LAST-MODIFIED:20250305T164304Z
UID:1302-1743703200-1743710400@hemophiliany.com
SUMMARY:Una reunión de generaciones - Celebración del Día Mundial de la Hemofilia 2025
DESCRIPTION:  \n¡Estamos emocionados de invitarte a unirte a nosotros para Una Familia: Una Reunión de Generaciones\, una celebración del Día Mundial de la Hemofilia 2025! El programa de 2025 se llevará a cabo el jueves 3 de abril a las 6:00 pm.\nEl programa Una Familia 2025 se centrará en los lazos innatos que unen a la comunidad de trastornos hemorrágicos. El evento\, apto para toda la familia\, explorará experiencias compartidas\, cómo forjar relaciones más profundas y cómo el poder de la conexión eleva a todos. Estamos ansiosos de pasar el Día Mundial de la Hemofilia contigo y celebrar los lazos inquebrantables que unen a la comunidad global de hemofilia.\n¡Los asistentes también podrán disfrutar de una deliciosa cena y una manualidad que ayudará a crear recuerdos inolvidables! A continuación\, encontrarás los detalles del programa.\n  \nRegistrese Hoy !!!\n 
URL:https://hemophiliany.com/event/una-reunion-de-generaciones-celebracion-del-dia-mundial-de-la-hemofilia-2025/
LOCATION:Manducatis Rustica VIG\, 46-35 Vernon Blvd\,\, Queens\, NY\, 11101\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250403T180000
DTEND;TZID=America/New_York:20250403T200000
DTSTAMP:20260423T150539
CREATED:20250305T163602Z
LAST-MODIFIED:20250305T163746Z
UID:1295-1743703200-1743710400@hemophiliany.com
SUMMARY:One Family Program Celebrating World Hemophilia Day 2025!
DESCRIPTION:We are thrilled to invite you to join us for One Family: A Gathering of Generations\, a World Hemophilia Day 2025 generations celebration! The 2025 program will occur on Thursday\, April 3rd at 6:00pm! \nThe 2025 One Family program will focus on the innate ties that bind the bleeding disorders community. The family-friendly event will explore shared experiences\, how to forge deeper relationships\, and how the power of connection uplifts everyone. We are eager to spend World Hemophilia Day with you and celebrate the unbreakable ties that bring the global hemophilia community together!\n Attendees can also look forward to a delicious meal and a craft that will help to create unforgettable memories!\n\nREGISTER HERE !!!
URL:https://hemophiliany.com/event/one-family-program-celebrating-world-hemophilia-day-2025/
LOCATION:Meaux Space\, 305 7th Ave\, 17th Floor\,\, New York\, NY\, 10001\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241101
DTEND;VALUE=DATE:20241104
DTSTAMP:20260423T150539
CREATED:20240124T185352Z
LAST-MODIFIED:20240919T184730Z
UID:504-1730419200-1730678399@hemophiliany.com
SUMMARY:Steven L. Margolies\, MD Family Educational Conference
DESCRIPTION:For families affected by bleeding disorders.  Held at Skytop Resort\, Skytop\, PA.  Transportation from NYC provided. \nREGISTER HERE !!!
URL:https://hemophiliany.com/event/steven-l-margolies-md-family-educational-conference/
LOCATION:Skytop Resort\, 1 Skytop Dr\, Skytop\, PA\, 18357\, United States
ORGANIZER;CN="Elizabeth Cedeno":MAILTO:elizabethc@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241019T103000
DTEND;TZID=America/New_York:20241019T140000
DTSTAMP:20260423T150539
CREATED:20240829T142554Z
LAST-MODIFIED:20240829T162312Z
UID:1056-1729333800-1729346400@hemophiliany.com
SUMMARY:Celebración del Mes de la Herencia Hispana- Tarde de Loteria
DESCRIPTION:  \nRegistrese Hoy !!!\n 
URL:https://hemophiliany.com/event/celebracion-del-mes-de-la-herencia-hispana-tarde-de-loteria/
LOCATION:134 West 29th St 2nd FL\, New York\, NY 10001\, 134 West 29th Street\, 2nd Floor\, New York\, NY\, 10001\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T103000
DTEND;TZID=America/New_York:20241005T130000
DTSTAMP:20260423T150539
CREATED:20240827T164029Z
LAST-MODIFIED:20240829T142630Z
UID:1037-1728124200-1728133200@hemophiliany.com
SUMMARY:Herencia Hispana Evento 1- Mañana De Arte
DESCRIPTION:                                                                                                        Registrese Hoy !!!
URL:https://hemophiliany.com/event/herencia-hispana-manana-de-arte/
LOCATION:Hemophilia Association of New York\, 131 W 33rd St\, New York\, NY\, 10001\, United States
CATEGORIES:Education
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240927
DTEND;VALUE=DATE:20240930
DTSTAMP:20260423T150539
CREATED:20221115T154856Z
LAST-MODIFIED:20240813T191615Z
UID:247-1727395200-1727654399@hemophiliany.com
SUMMARY:Women’s Self-Advocacy & Self Care Seminar
DESCRIPTION:For women and girls ages (13+) with inherited bleeding disorders/carriers registered with HANY residing within the NY State service area including caregivers\, immediate family members & spouses of someone with a bleeding disorder. \n \nREGISTER HERE 
URL:https://hemophiliany.com/event/test-event/
LOCATION:Tarrytown House Estate on The Hudson\, 49 E Sunnyside Ln\, Tarrytown\, NY\, 10591\, United States
CATEGORIES:Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240824T193000
DTEND;TZID=America/New_York:20240824T213000
DTSTAMP:20260423T150539
CREATED:20240626T144936Z
LAST-MODIFIED:20240626T145100Z
UID:963-1724527800-1724535000@hemophiliany.com
SUMMARY:New York City Football Club vs. Chicago Saturday\, August 24th at 7:30 PM Citi Field
DESCRIPTION:
URL:https://hemophiliany.com/event/new-york-city-football-club-vs-chicago-saturday-august-24th-at-730-pm-citi-field/
LOCATION:Citi Field\, 41 Seaver Way\,\, Queens\, NY\, 11368
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240517
DTEND;VALUE=DATE:20240520
DTSTAMP:20260423T150539
CREATED:20240124T184518Z
LAST-MODIFIED:20240402T202753Z
UID:501-1715904000-1716163199@hemophiliany.com
SUMMARY:Blood Brotherhood Weekend Retreat
DESCRIPTION:Enjoy a weekend retreat featuring educational sessions\, activities\, and time to share your experiences and connect with other community members. This event is for men 18+ living with rare bleeding disorders registered with HANY.  \nSpace is limited!!! \n>>>Register Today !!!<<<
URL:https://hemophiliany.com/event/blood-brotherhood-retreat/
LOCATION:Tarrytown House Estate on The Hudson\, 49 E Sunnyside Ln\, Tarrytown\, NY\, 10591\, United States
ORGANIZER;CN="Lina Garzon":MAILTO:lgarzon@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240505T163000
DTEND;TZID=America/New_York:20240505T183000
DTSTAMP:20260423T150539
CREATED:20240402T165225Z
LAST-MODIFIED:20240408T200037Z
UID:577-1714926600-1714933800@hemophiliany.com
SUMMARY:Gene Therapy in Hemophilia
DESCRIPTION:Join us for a presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on the gene therapy journey. Findings from a clinical trial will be shared and what they could mean for you. Learn how to get started\, what questions to ask your doctor\, and hear one patient’s experience. \nThis event is for those ages 17+ with severe or moderate Hemophilia and their significant other or parent. \nFood and refreshments will be provided. Space is limited! \nRegistration deadline: Monday\, April 29\, 2024 \n>>>>Register Today !!!<<<<
URL:https://hemophiliany.com/event/gene-therapy-in-hemophilia/
LOCATION:Jade Eatery\, 1 Station Square Suite 2\, Queens\, NY\, 11375\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240426
DTEND;VALUE=DATE:20240429
DTSTAMP:20260423T150539
CREATED:20240124T183517Z
LAST-MODIFIED:20240402T202859Z
UID:499-1714089600-1714348799@hemophiliany.com
SUMMARY:Self Advocacy\, Independence & Leadership - S.A.I.L.
DESCRIPTION:Join us from Friday\, April 26-Sunday\, April 28\, 2024 for a weekend full of exciting sessions\, activities\, and fun at YMCA Camp Bernie! \nThis program is for teens of the bleeding disorders community ages 13-18. You are welcome to bring a friend\, sibling and/or accompanying parent/guardian. \nParents/guardians are not required to attend. There is no charge for this program. \nRound-trip transportation will be provided. A bus will be leaving from the HANY office on Friday\, April 26 at 5 pm. \nRegistration deadline: Monday\, April 15\, 2024  \n>>><<<
URL:https://hemophiliany.com/event/self-advocacy-independence-leadership-s-a-i-l/
LOCATION:YMCA Camp Bernie\, 327 Turkey Top Road\, Port Murray\, NJ\, 07865\, United States
ORGANIZER;CN="Elizabeth Cedeno":MAILTO:elizabethc@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240309T103000
DTEND;TZID=America/New_York:20240309T133000
DTSTAMP:20260423T150539
CREATED:20240216T214027Z
LAST-MODIFIED:20240216T214027Z
UID:527-1709980200-1709991000@hemophiliany.com
SUMMARY:Visualiza tus Sueños
DESCRIPTION:¡Acompañanos el 9 de Marzo a las 10:30 am!\n\nEste taller te ayudará a manifestar tus sueños\, deseos y metas para este año en una forma física. Tendrás la oportunidad de crear tu propio tablero de visión. Creamos este taller de motivación para inspirar a nuestra comunidad en enfocarse en lo positivo y visualizar lo que desean o lo que se proponen en cumplir para este año.\n\nTambién tendremos una representante de CUNY Citizenship Now que nos hablará sobre los servicios de inmigración que ofrecen.\n \n\nFecha: Sábado\, 9 de Marzo de 2024\nHora: 10:30-1:30 pm\nLocación: Hemophilia Association of New York\, 131 West 33rd Street\, #11D\, New York\, NY 10001\n\nSe proporcionará almuerzo. Registración para este evento cerrara el 6 de Marzo. El espacio es limitado.\n\n\n\nRegister .
URL:https://hemophiliany.com/event/visualiza-tus-suenos/
LOCATION:Hemophilia Association of New York\, 131 W 33rd St\, New York\, NY\, 10001\, United States
ORGANIZER;CN="Lina Garzon":MAILTO:lgarzon@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231110
DTEND;VALUE=DATE:20231113
DTSTAMP:20260423T150539
CREATED:20230912T150629Z
LAST-MODIFIED:20230918T171219Z
UID:413-1699574400-1699833599@hemophiliany.com
SUMMARY:2023 Steven L. Margolies\, M.D. Family Educational Conference
DESCRIPTION:Join us for our best & biggest program of the year!\nThe Hemophilia Association of New York will be hosting our Annual Steven L. Margolies\, M.D. Family Educational Conference at Skytop Lodge this year. This educational conference is for anyone living with a bleeding disorder registered with HANY residing within the NY State service area. The conference will be a time for relationship centered adventure\, strengthening of family and community connections\, and education in the areas of nutrition\, health\, personal development\, and advocacy specific to the needs of all those attending. Programs\, meals\, and rooms are included. Transportation to and from Skytop Lodge will be available.
URL:https://hemophiliany.com/event/2023-steven-l-margolies-m-d-family-educational-conference/
LOCATION:Skytop Lodge\, 1 Skytop Dr\, Skytop\, PA\, 18357\, United States
ORGANIZER;CN="Lina Garzon":MAILTO:lgarzon@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231021T101500
DTEND;TZID=America/New_York:20231021T133000
DTSTAMP:20260423T150539
CREATED:20230912T150803Z
LAST-MODIFIED:20231002T203857Z
UID:410-1697883300-1697895000@hemophiliany.com
SUMMARY:Celebración del Mes de la Herencia Hispana
DESCRIPTION:En celebración del mes de la herencia hispana\, este evento tendra un énfasis en los logros\, fortaleza y resiliencia de nuestra comunidad.  \nLourdes Humble de Pfizer presentará sobre el tema de “Adversidad\, Fortaleza y Resiliencia” y tendremos actividades donde celebraremos nuestros logros y la diversidad de nuestras culturas. \nAlmuerzo será incluido. Este evento es gratuito. \n¡Les tenemos sorpresas a los padres y hijos para el regreso a la escuela!
URL:https://hemophiliany.com/event/celebracion-del-mes-de-la-herencia-hispana/
LOCATION:220 E 23rd Street\, Suite 400 New York\, NY 10010\, 220 E 23rd Street Suite 400\, New York\, NY\, 10010\, United States
ORGANIZER;CN="Lina Garzon":MAILTO:lgarzon@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230922
DTEND;VALUE=DATE:20230925
DTSTAMP:20260423T150539
CREATED:20230912T151030Z
LAST-MODIFIED:20230918T171521Z
UID:407-1695340800-1695599999@hemophiliany.com
SUMMARY:2023 SAIL -  Self Advocacy\, Independence & Leadership Teen Retreat Program
DESCRIPTION:This program is for children of the bleeding disorders community ages 13-18\, siblings and accompanying parent / guardian for those under 18. \nThe focus of this program is: \nSelf Advocacy – “Who am I?”  “What is my story?”  “How can I best express my issues and needs?” \nIndependence – As teens move from childhood to early adulthood they would benefit from enhancing their skill sets required for independence.  Preparing for college\, work\, internships\, managing finances\, managing their health. \nLeadership – Specific exercises in leadership will build confidence and better decision making for this cohort.
URL:https://hemophiliany.com/event/2023-sail-self-advocacy-independence-leadership-teen-retreat-program/
LOCATION:Frost Valley YMCA Camp\, 2000 Frost Valley Rd\, Claryville\, NY\, 12725\, United States
ORGANIZER;CN="Lina Garzon":MAILTO:lgarzon@hemophiliany.com
END:VEVENT
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