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X-WR-CALNAME:Hemophilia Association of New York
X-ORIGINAL-URL:https://hemophiliany.com
X-WR-CALDESC:Events for Hemophilia Association of New York
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240824T193000
DTEND;TZID=America/New_York:20240824T213000
DTSTAMP:20260423T062809
CREATED:20240626T144936Z
LAST-MODIFIED:20240626T145100Z
UID:963-1724527800-1724535000@hemophiliany.com
SUMMARY:New York City Football Club vs. Chicago Saturday\, August 24th at 7:30 PM Citi Field
DESCRIPTION:
URL:https://hemophiliany.com/event/new-york-city-football-club-vs-chicago-saturday-august-24th-at-730-pm-citi-field/
LOCATION:Citi Field\, 41 Seaver Way\,\, Queens\, NY\, 11368
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240927
DTEND;VALUE=DATE:20240930
DTSTAMP:20260423T062809
CREATED:20221115T154856Z
LAST-MODIFIED:20240813T191615Z
UID:247-1727395200-1727654399@hemophiliany.com
SUMMARY:Women’s Self-Advocacy & Self Care Seminar
DESCRIPTION:For women and girls ages (13+) with inherited bleeding disorders/carriers registered with HANY residing within the NY State service area including caregivers\, immediate family members & spouses of someone with a bleeding disorder. \n \nREGISTER HERE 
URL:https://hemophiliany.com/event/test-event/
LOCATION:Tarrytown House Estate on The Hudson\, 49 E Sunnyside Ln\, Tarrytown\, NY\, 10591\, United States
CATEGORIES:Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T103000
DTEND;TZID=America/New_York:20241005T130000
DTSTAMP:20260423T062809
CREATED:20240827T164029Z
LAST-MODIFIED:20240829T142630Z
UID:1037-1728124200-1728133200@hemophiliany.com
SUMMARY:Herencia Hispana Evento 1- Mañana De Arte
DESCRIPTION:                                                                                                        Registrese Hoy !!!
URL:https://hemophiliany.com/event/herencia-hispana-manana-de-arte/
LOCATION:Hemophilia Association of New York\, 131 W 33rd St\, New York\, NY\, 10001\, United States
CATEGORIES:Education
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241019T103000
DTEND;TZID=America/New_York:20241019T140000
DTSTAMP:20260423T062809
CREATED:20240829T142554Z
LAST-MODIFIED:20240829T162312Z
UID:1056-1729333800-1729346400@hemophiliany.com
SUMMARY:Celebración del Mes de la Herencia Hispana- Tarde de Loteria
DESCRIPTION:  \nRegistrese Hoy !!!\n 
URL:https://hemophiliany.com/event/celebracion-del-mes-de-la-herencia-hispana-tarde-de-loteria/
LOCATION:134 West 29th St 2nd FL\, New York\, NY 10001\, 134 West 29th Street\, 2nd Floor\, New York\, NY\, 10001\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241101
DTEND;VALUE=DATE:20241104
DTSTAMP:20260423T062809
CREATED:20240124T185352Z
LAST-MODIFIED:20240919T184730Z
UID:504-1730419200-1730678399@hemophiliany.com
SUMMARY:Steven L. Margolies\, MD Family Educational Conference
DESCRIPTION:For families affected by bleeding disorders.  Held at Skytop Resort\, Skytop\, PA.  Transportation from NYC provided. \nREGISTER HERE !!!
URL:https://hemophiliany.com/event/steven-l-margolies-md-family-educational-conference/
LOCATION:Skytop Resort\, 1 Skytop Dr\, Skytop\, PA\, 18357\, United States
ORGANIZER;CN="Elizabeth Cedeno":MAILTO:elizabethc@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250403T180000
DTEND;TZID=America/New_York:20250403T200000
DTSTAMP:20260423T062809
CREATED:20250305T163602Z
LAST-MODIFIED:20250305T163746Z
UID:1295-1743703200-1743710400@hemophiliany.com
SUMMARY:One Family Program Celebrating World Hemophilia Day 2025!
DESCRIPTION:We are thrilled to invite you to join us for One Family: A Gathering of Generations\, a World Hemophilia Day 2025 generations celebration! The 2025 program will occur on Thursday\, April 3rd at 6:00pm! \nThe 2025 One Family program will focus on the innate ties that bind the bleeding disorders community. The family-friendly event will explore shared experiences\, how to forge deeper relationships\, and how the power of connection uplifts everyone. We are eager to spend World Hemophilia Day with you and celebrate the unbreakable ties that bring the global hemophilia community together!\n Attendees can also look forward to a delicious meal and a craft that will help to create unforgettable memories!\n\nREGISTER HERE !!!
URL:https://hemophiliany.com/event/one-family-program-celebrating-world-hemophilia-day-2025/
LOCATION:Meaux Space\, 305 7th Ave\, 17th Floor\,\, New York\, NY\, 10001\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250403T180000
DTEND;TZID=America/New_York:20250403T200000
DTSTAMP:20260423T062809
CREATED:20250305T164304Z
LAST-MODIFIED:20250305T164304Z
UID:1302-1743703200-1743710400@hemophiliany.com
SUMMARY:Una reunión de generaciones - Celebración del Día Mundial de la Hemofilia 2025
DESCRIPTION:  \n¡Estamos emocionados de invitarte a unirte a nosotros para Una Familia: Una Reunión de Generaciones\, una celebración del Día Mundial de la Hemofilia 2025! El programa de 2025 se llevará a cabo el jueves 3 de abril a las 6:00 pm.\nEl programa Una Familia 2025 se centrará en los lazos innatos que unen a la comunidad de trastornos hemorrágicos. El evento\, apto para toda la familia\, explorará experiencias compartidas\, cómo forjar relaciones más profundas y cómo el poder de la conexión eleva a todos. Estamos ansiosos de pasar el Día Mundial de la Hemofilia contigo y celebrar los lazos inquebrantables que unen a la comunidad global de hemofilia.\n¡Los asistentes también podrán disfrutar de una deliciosa cena y una manualidad que ayudará a crear recuerdos inolvidables! A continuación\, encontrarás los detalles del programa.\n  \nRegistrese Hoy !!!\n 
URL:https://hemophiliany.com/event/una-reunion-de-generaciones-celebracion-del-dia-mundial-de-la-hemofilia-2025/
LOCATION:Manducatis Rustica VIG\, 46-35 Vernon Blvd\,\, Queens\, NY\, 11101\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250417T180000
DTEND;TZID=America/New_York:20250417T200000
DTSTAMP:20260423T062809
CREATED:20250307T231751Z
LAST-MODIFIED:20250307T231751Z
UID:1318-1744912800-1744920000@hemophiliany.com
SUMMARY:Alhemo Virtual Q+A Virtual Event 4/17/2025
DESCRIPTION: The HANY team is excited to invite you to join us on April 17th\, 2025 for a virtual educational presentation! \n \nThis event will be a Virtual Q+A with Novo Nordisk Representative Martha Boria Negron\, regarding Alhemo. Alhemo is the first ever subcutaneous pen approved for treatment in those affected by Hemophilia A or B WITH inhibitors. \nWe urge you to participate in this unique opportunity to bring your questions directly to Martha!\n \nThis program is for any patient\, caregiver\, or family affected by Hemophilia A or B WITH inhibitors.\n  \n \n  \nREGISTER HERE !!!
URL:https://hemophiliany.com/event/alhemo-virtual-qa-virtual-event-4-17-2025/
LOCATION:Virtual  – Online
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T180000
DTEND;TZID=America/New_York:20250424T200000
DTSTAMP:20260423T062809
CREATED:20250403T133420Z
LAST-MODIFIED:20250403T133533Z
UID:1338-1745517600-1745524800@hemophiliany.com
SUMMARY:WOMEN’S HEALTH INITIATIVE
DESCRIPTION:WE ARE EXCITED TO INVITE YOU TO THE FIRST\nEVENT IN OUR WOMEN’S HEALTH SERIES! \n \n  \nREGISTER HERE !!!\n  \n 
URL:https://hemophiliany.com/event/womens-health-initiative/
LOCATION:Spin New York Midtown\, 1626 Broadway\, New York\, NY\, 10019\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250502
DTEND;VALUE=DATE:20250505
DTSTAMP:20260423T062809
CREATED:20250115T163256Z
LAST-MODIFIED:20250226T193832Z
UID:1203-1746144000-1746403199@hemophiliany.com
SUMMARY:S.A.I.L Teen Educational Program
DESCRIPTION:  \n                                                                                        >>> REGISTER HERE !!! <<<
URL:https://hemophiliany.com/event/s-a-i-l-teen-educational-program/
LOCATION:YMCA Camp Mason 23 Birch Ridge Road Hardwick NJ 07825\, 23 Birch Ridge Road\, Hardwick\, NY\, 07825\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250624T183000
DTEND;TZID=America/New_York:20250624T200000
DTSTAMP:20260423T062809
CREATED:20250530T150155Z
LAST-MODIFIED:20250605T170731Z
UID:1435-1750789800-1750795200@hemophiliany.com
SUMMARY:Hympavzi Webinar
DESCRIPTION:Our goal at HANY is to always ensure that our community is up to date with changes occurring in the bleeding disorders treatment landscape\, and as such are able to make informed decisions regarding their treatment regimen!\n\nHYMPAVZI is used to help prevent bleeding in people 12 years and older with hemophilia A or B who do not have inhibitors. It works by blocking a protein called TFPI\, which helps the blood clot more effectively.\n\nIf you have any interest\, please register directly at this link: -> ->  Hympavzi Webinar Registration Form! \n Come prepared with questions for Pfizer representative\, Jill Coyle\, regarding Hympavzi!\n \nWe look forward to seeing you there!
URL:https://hemophiliany.com/event/hympavzi-webinar/
LOCATION:NY
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250625T184500
DTEND;TZID=America/New_York:20250625T200000
DTSTAMP:20260423T062809
CREATED:20250605T185542Z
LAST-MODIFIED:20250605T185825Z
UID:1445-1750877100-1750881600@hemophiliany.com
SUMMARY:Women's Health Initiative - Resilient Women
DESCRIPTION:Hello!\nWe hope this email finds you well and enjoying the warmer weather!\n\n\nAs women affected by bleeding disorders\, caregivers of someone with a bleeding disorder\, or even a child/sibling of someone with a bleeding disorder\, HANY understands it is hard to find time in your day to do things for yourself. That is why we launched our Resilient Women Series. Our hope is that these events are a way for the women of our community to be able to carve out time in their lives to focus on improving their physical and mental wellbeing. \nOur second event will be on Wednesday\, June 25th at 6:45pm at The Capital Grille Garden City. We will be enjoying a delicious dinner\, an excellent opportunity for camaraderie\, bonding\, and mutual understanding amongst community members old and new. Along with this delectable meal\, we will also be hosting an educational program presented by Sanofi representative Tyshawn Constantine. \n\nProgram: Resilient Women – HANY Presents: Women’s Health Initiative\nLocation: The Capital Grille Garden City (630 Old Country Rd\, Garden City\, NY 11530)\n\nDate: Wednesday\, June 25th\, 2025 at 6:45pm \n\nIf you are interested\, please register HERE !!! as soon as possible. Please feel free to reach out if you have any questions or concerns!\n\nAll the Best\,\nHANY Team
URL:https://hemophiliany.com/event/1445/
LOCATION:The Capital Grille Garden City\, 630 Old Country Rd\,\, Garden City\, NY\, 11530\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250826T173000
DTEND;TZID=America/New_York:20250826T200000
DTSTAMP:20260423T062809
CREATED:20250730T163904Z
LAST-MODIFIED:20250805T150759Z
UID:1529-1756229400-1756238400@hemophiliany.com
SUMMARY:Women’s Health Initiative: Paint & Create
DESCRIPTION:Join us for a creative and restorative evening where you’ll have the chance to paint your own beautiful artwork\, enjoy a delicious dinner\, and hear an empowering educational talk from\n Johanna Lupoli\, BS RN MSCN\, Therapeutic Education Manager at Sanofi.\nIt’s the perfect setting to unwind\, connect with other women in the community\, and take time for yourself in a supportive\, welcoming space. \nWe’d love to see you there! \n \nREGISTER HERE !!!
URL:https://hemophiliany.com/event/womens-health-initiative-paint-create/
LOCATION:Painting Lounge\, 309 Roebling Street\, Brooklyn\, NY\, 11211\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250903T180000
DTEND;TZID=America/New_York:20250903T200000
DTSTAMP:20260423T062809
CREATED:20250730T165225Z
LAST-MODIFIED:20250730T165307Z
UID:1535-1756922400-1756929600@hemophiliany.com
SUMMARY:HANY x Pfizer Educational Night
DESCRIPTION:A special evening focused on Hympavzi\, a new treatment option for those living with Hemophilia A or B (without inhibitors)\nThis event is designed to empower patients\, caregivers\, and families with clear\, up-to-date insights on the evolving treatment landscape. You’ll leave better informed and more confident in your care decisions. It’s also a chance to connect with others who share your experience\, in a warm\, welcoming space where community and conversation come first. \nDinner will be provided!\nMore about Hympavzi: www.hympavzi.com \nWe’d love to see you there! \n \nIf you are interested: Please RSVP as soon as possible using the form below:\n HANY x Pfizer Educational Night Registration
URL:https://hemophiliany.com/event/hany-x-pfizer-educational-night/
LOCATION:Hemophilia Association of New York\, 131 W 33rd St\, New York\, NY\, 10001\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250920T000000
DTEND;TZID=America/New_York:20250920T140000
DTSTAMP:20260423T062809
CREATED:20250730T171621Z
LAST-MODIFIED:20250730T172549Z
UID:1539-1758326400-1758376800@hemophiliany.com
SUMMARY:Celebración del Mes de la Herencia Hispana: Tarde de Trivia
DESCRIPTION:Hola! ¡Acompáñanos el sábado\, 20 de septiembre para una tarde llena de diversión\, cultura y comunidad!\nPrepárate para disfrutar de juegos temáticos\, poner a prueba tu conocimiento\, oído musical\, y espíritu competitivo\, y tener la oportunidad de ganar premios! Será un evento ideal para compartir con la familia\, pasarla bien y conectar con otros miembros de la comunidad.\n¡Esperamos verte allí!\n \nEste evento está abierto a todos los miembros de la comunidad HANY. Solo tienes que venir con ganas de jugar\, reír\, y compartir.Si te interesa participar\, confirma tu asistencia aquí: \nCelebracion del Mes de la Herencia Hispana: Tarde de Trivia
URL:https://hemophiliany.com/event/celebracion-del-mes-de-la-herencia-hispana-tarde-de-trivia/
LOCATION:Hemophilia Association of New York\, 131 W 33rd St\, New York\, NY\, 10001\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250926
DTEND;VALUE=DATE:20250929
DTSTAMP:20260423T062809
CREATED:20250115T165046Z
LAST-MODIFIED:20250708T152416Z
UID:1212-1758844800-1759103999@hemophiliany.com
SUMMARY:Blood Brotherhood Weekend
DESCRIPTION:Register Here !!!
URL:https://hemophiliany.com/event/blood-brotherhood-weekend/
LOCATION:Tarrytown House Estate on The Hudson\, 49 E Sunnyside Ln\, Tarrytown\, NY\, 10591\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251016
DTEND;VALUE=DATE:20251017
DTSTAMP:20260423T062809
CREATED:20250115T165714Z
LAST-MODIFIED:20250708T172109Z
UID:1215-1760572800-1760659199@hemophiliany.com
SUMMARY:HANY 75th Anniversary Celebration Of Service
DESCRIPTION:  \nBuy Tickets Here !!!\n 
URL:https://hemophiliany.com/event/hany-75th-anniversary-celebration-of-service/
LOCATION:Helen Mills\, 137-139 W 26th St\,\, New York\, NY\, 10001\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251114
DTEND;VALUE=DATE:20251117
DTSTAMP:20260423T062809
CREATED:20250115T170412Z
LAST-MODIFIED:20250708T204046Z
UID:1222-1763078400-1763337599@hemophiliany.com
SUMMARY:Steven L Margolies Family Educational Conference 2025
DESCRIPTION:Register Here !!!
URL:https://hemophiliany.com/event/steven-l-margolies-family-educational-conference-2025/
LOCATION:Chauncey Hotel and Conference Center\, 1 Chauncey Road\, Princeton\, NJ\, 08541\, United States
ORGANIZER;CN="Elizabeth Cedeno":MAILTO:elizabethc@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251203T180000
DTEND;TZID=America/New_York:20251203T200000
DTSTAMP:20260423T062809
CREATED:20251028T135816Z
LAST-MODIFIED:20251028T135816Z
UID:1562-1764784800-1764792000@hemophiliany.com
SUMMARY:HANY x Pfizer Dinner Presentation
DESCRIPTION:Register Here !!!\n  \nEvent Details\nWhen: Wednesday\, December 3rd\, 2025 at 6:00 PM\nWhere: Trattoria Dell’Arte\, 900 7th Ave\, New York\, NY 10019\nProgram: HANY x Pfizer Dinner Presentation\nLearn more about Hympavzi: www.hympavzi.com
URL:https://hemophiliany.com/event/hany-x-pfizer-dinner-presentation/
LOCATION:Trattoria Dell’Arte\, 900 7th Ave\,\, New York\, 10019\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260226T180000
DTEND;TZID=America/New_York:20260226T200000
DTSTAMP:20260423T062809
CREATED:20260204T200247Z
LAST-MODIFIED:20260204T200247Z
UID:1597-1772128800-1772136000@hemophiliany.com
SUMMARY:HANY x Novo Nordisk Alhemo Dinner
DESCRIPTION:  \nYou’re invited to an engaging evening at Ramerino Italian Prime on Thursday\, February 26th at 6:00 PM. Discover Alhemo\, a subcutaneous treatment for  \nHemophilia A and B\, while enjoying a complimentary dinner in a welcoming\, supportive setting. \nThis event is designed for patients\, caregivers\, and families who want to: \n\nLearn about today’s evolving treatment options\n Connect with others facing similar experiences\nGain confidence in making care decisions\n\nRegister Here !!!
URL:https://hemophiliany.com/event/hany-x-novo-nordisk-alhemo-dinner/
LOCATION:Ramerino Italian Prime\, 16 E 39th St\,\, New York NY 10016\, NY\, 100016\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260407T180000
DTEND;TZID=America/New_York:20260407T200000
DTSTAMP:20260423T062809
CREATED:20260331T142416Z
LAST-MODIFIED:20260331T142623Z
UID:1625-1775584800-1775592000@hemophiliany.com
SUMMARY:One Family Program - Celebrating World Hemophilia Day 2026
DESCRIPTION:REGISTER HERE !!!
URL:https://hemophiliany.com/event/one-family-program-celebrating-world-hemophilia-day-2026/
LOCATION:Meaux Space\, 305 7th Ave\, 17th Floor\,\, New York\, NY\, 10001\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260428T180000
DTEND;TZID=America/New_York:20260428T200000
DTSTAMP:20260423T062809
CREATED:20260331T145407Z
LAST-MODIFIED:20260331T145919Z
UID:1631-1777399200-1777406400@hemophiliany.com
SUMMARY:HANY x Pfizer Toma de Decisiones Compartida
DESCRIPTION: Regístrese Aquí !!!
URL:https://hemophiliany.com/event/hany-x-pfizer-toma-de-decisiones-compartida/
LOCATION:NY
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260501T080000
DTEND;TZID=America/New_York:20260503T170000
DTSTAMP:20260423T062809
CREATED:20260120T172909Z
LAST-MODIFIED:20260120T172909Z
UID:1591-1777622400-1777827600@hemophiliany.com
SUMMARY:Women’s Self-Care and Self-Advocacy Seminar at Mohonk Mountain House
DESCRIPTION:
URL:https://hemophiliany.com/event/womens-self-care-and-self-advocacy-seminar-at-mohonk-mountain-house/
LOCATION:Mohonk Mountain House\, 100 Mountain Rest RD\, New Paltz\, NY\, 12561\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260521T180000
DTEND;TZID=America/New_York:20260521T200000
DTSTAMP:20260423T062809
CREATED:20260331T150349Z
LAST-MODIFIED:20260331T150421Z
UID:1635-1779386400-1779393600@hemophiliany.com
SUMMARY:HANY x Novo Nordisk Alhemo Dinner
DESCRIPTION:Register Here !!!
URL:https://hemophiliany.com/event/hany-x-novo-nordisk-alhemo-dinner-2/
LOCATION:Ramerino Italian Prime\, 16 E 39th St\,\, New York NY 10016\, NY\, 100016\, United States
ORGANIZER;CN="Janine Garcia":MAILTO:janineg@hemophiliany.com
END:VEVENT
END:VCALENDAR