Hemophilia Association of New York

HEMOPHILIA A: A Focus Beyond Bleeding Rates
2026-06-25 18:30 - 19:30 (America/New_York) | Hemophilia Association of New York, 131 W 33rd St, New York, NY, 10001, United States

HANY x Novo Nordisk Alhemo Dinner
2026-05-21 18:00 - 20:00 | Ramerino Italian Prime, 16 E 39th St,, New York NY 10016, NY, 100016, United States
Register Here !!!

Women’s Self-Care and Self-Advocacy Seminar at Mohonk Mountain House
2026-05-01 08:00 - 2026-05-03 17:00 | Mohonk Mountain House, 100 Mountain Rest RD, New Paltz, NY, 12561, United States

HANY x Pfizer Toma de Decisiones Compartida
2026-04-28 18:00 - 20:00 | NJ
Regístrese Aquí !!!

One Family Program - Celebrating World Hemophilia Day 2026
2026-04-07 18:00 - 20:00 | Meaux Space, 305 7th Ave, 17th Floor,, New York, NY, 10001, United States

HANY x Novo Nordisk Alhemo Dinner
2026-02-26 18:00 - 20:00 | Ramerino Italian Prime, 16 E 39th St,, New York NY 10016, NY, 100016, United States
You’re invited to an engaging evening at Ramerino Italian Prime on Thursday, February 26th at 6:00 PM. Discover Alhemo, a subcutaneous treatment for
Hemophilia A and B, while enjoying a complimentary dinner in a welcoming, supportive setting.
This event is designed for patients, caregivers, and families who want to:

Learn about today’s evolving treatment options
Connect with others facing similar experiences
Gain confidence in making care decisions

Register Here !!!

HANY x Pfizer Dinner Presentation
2025-12-03 18:00 - 20:00 | Trattoria Dell’Arte, 900 7th Ave,, New York, 10019, United States
Register Here !!!

Event Details
When: Wednesday, December 3rd, 2025 at 6:00 PM
Where: Trattoria Dell’Arte, 900 7th Ave, New York, NY 10019
Program: HANY x Pfizer Dinner Presentation
Learn more about Hympavzi: www.hympavzi.com

Steven L Margolies Family Educational Conference 2025
2025-11-14 - 2025-11-16 | Chauncey Hotel and Conference Center, 1 Chauncey Road, Princeton, NJ, 08541, United States

HANY 75th Anniversary Celebration Of Service
2025-10-16 | Helen Mills, 137-139 W 26th St,, New York, NY, 10001, United States
Buy Tickets Here !!!

Blood Brotherhood Weekend
2025-09-26 - 2025-09-28 | Tarrytown House Estate on The Hudson, 49 E Sunnyside Ln, Tarrytown, NY, 10591, United States

Celebración del Mes de la Herencia Hispana: Tarde de Trivia
2025-09-20 00:00 - 14:00 | Hemophilia Association of New York, 131 W 33rd St, New York, NY, 10001, United States
Hola! ¡Acompáñanos el sábado, 20 de septiembre para una tarde llena de diversión, cultura y comunidad!
Prepárate para disfrutar de juegos temáticos, poner a prueba tu conocimiento, oído musical, y espíritu competitivo, y tener la oportunidad de ganar premios! Será un evento ideal para compartir con la familia, pasarla bien y conectar con otros miembros de la comunidad.
¡Esperamos verte allí!

Este evento está abierto a todos los miembros de la comunidad HANY. Solo tienes que venir con ganas de jugar, reír, y compartir.Si te interesa participar, confirma tu asistencia aquí:
Celebracion del Mes de la Herencia Hispana: Tarde de Trivia

HANY x Pfizer Educational Night
2025-09-03 18:00 - 20:00 | Hemophilia Association of New York, 131 W 33rd St, New York, NY, 10001, United States
A special evening focused on Hympavzi, a new treatment option for those living with Hemophilia A or B (without inhibitors)
This event is designed to empower patients, caregivers, and families with clear, up-to-date insights on the evolving treatment landscape. You’ll leave better informed and more confident in your care decisions. It’s also a chance to connect with others who share your experience, in a warm, welcoming space where community and conversation come first.
Dinner will be provided!
More about Hympavzi: www.hympavzi.com
We’d love to see you there!

If you are interested: Please RSVP as soon as possible using the form below:
HANY x Pfizer Educational Night Registration

Women’s Health Initiative: Paint & Create
2025-08-26 17:30 - 20:00 | Painting Lounge, 309 Roebling Street, Brooklyn, NY, 11211, United States
Join us for a creative and restorative evening where you’ll have the chance to paint your own beautiful artwork, enjoy a delicious dinner, and hear an empowering educational talk from
Johanna Lupoli, BS RN MSCN, Therapeutic Education Manager at Sanofi.
It’s the perfect setting to unwind, connect with other women in the community, and take time for yourself in a supportive, welcoming space.
We’d love to see you there!

REGISTER HERE !!!

Women's Health Initiative - Resilient Women
2025-06-25 18:45 - 20:00 | The Capital Grille Garden City, 630 Old Country Rd,, Garden City, NY, 11530, United States
Hello!
We hope this email finds you well and enjoying the warmer weather!

As women affected by bleeding disorders, caregivers of someone with a bleeding disorder, or even a child/sibling of someone with a bleeding disorder, HANY understands it is hard to find time in your day to do things for yourself. That is why we launched our Resilient Women Series. Our hope is that these events are a way for the women of our community to be able to carve out time in their lives to focus on improving their physical and mental wellbeing.
Our second event will be on Wednesday, June 25th at 6:45pm at The Capital Grille Garden City. We will be enjoying a delicious dinner, an excellent opportunity for camaraderie, bonding, and mutual understanding amongst community members old and new. Along with this delectable meal, we will also be hosting an educational program presented by Sanofi representative Tyshawn Constantine.

Program: Resilient Women – HANY Presents: Women’s Health Initiative
Location: The Capital Grille Garden City (630 Old Country Rd, Garden City, NY 11530)

Date: Wednesday, June 25th, 2025 at 6:45pm

If you are interested, please register HERE !!! as soon as possible. Please feel free to reach out if you have any questions or concerns!

All the Best,
HANY Team

Hympavzi Webinar
2025-06-24 18:30 - 20:00 | NJ
Our goal at HANY is to always ensure that our community is up to date with changes occurring in the bleeding disorders treatment landscape, and as such are able to make informed decisions regarding their treatment regimen!

HYMPAVZI is used to help prevent bleeding in people 12 years and older with hemophilia A or B who do not have inhibitors. It works by blocking a protein called TFPI, which helps the blood clot more effectively.

If you have any interest, please register directly at this link: -> -> Hympavzi Webinar Registration Form!
Come prepared with questions for Pfizer representative, Jill Coyle, regarding Hympavzi!

We look forward to seeing you there!

S.A.I.L Teen Educational Program
2025-05-02 - 2025-05-04 | YMCA Camp Mason 23 Birch Ridge Road Hardwick NJ 07825, 23 Birch Ridge Road, Hardwick, NY, 07825, United States
>>> REGISTER HERE !!! <<<

WOMEN’S HEALTH INITIATIVE
2025-04-24 18:00 - 20:00 | Spin New York Midtown, 1626 Broadway, New York, NY, 10019, United States
WE ARE EXCITED TO INVITE YOU TO THE FIRST
EVENT IN OUR WOMEN’S HEALTH SERIES!

REGISTER HERE !!!

Alhemo Virtual Q+A Virtual Event 4/17/2025
2025-04-17 18:00 - 20:00 | Virtual – Online
The HANY team is excited to invite you to join us on April 17th, 2025 for a virtual educational presentation!

This event will be a Virtual Q+A with Novo Nordisk Representative Martha Boria Negron, regarding Alhemo. Alhemo is the first ever subcutaneous pen approved for treatment in those affected by Hemophilia A or B WITH inhibitors.
We urge you to participate in this unique opportunity to bring your questions directly to Martha!

This program is for any patient, caregiver, or family affected by Hemophilia A or B WITH inhibitors.

REGISTER HERE !!!

Una reunión de generaciones - Celebración del Día Mundial de la Hemofilia 2025
2025-04-03 18:00 - 20:00 | Manducatis Rustica VIG, 46-35 Vernon Blvd,, Queens, NY, 11101, United States
¡Estamos emocionados de invitarte a unirte a nosotros para Una Familia: Una Reunión de Generaciones, una celebración del Día Mundial de la Hemofilia 2025! El programa de 2025 se llevará a cabo el jueves 3 de abril a las 6:00 pm.
El programa Una Familia 2025 se centrará en los lazos innatos que unen a la comunidad de trastornos hemorrágicos. El evento, apto para toda la familia, explorará experiencias compartidas, cómo forjar relaciones más profundas y cómo el poder de la conexión eleva a todos. Estamos ansiosos de pasar el Día Mundial de la Hemofilia contigo y celebrar los lazos inquebrantables que unen a la comunidad global de hemofilia.
¡Los asistentes también podrán disfrutar de una deliciosa cena y una manualidad que ayudará a crear recuerdos inolvidables! A continuación, encontrarás los detalles del programa.

Registrese Hoy !!!

One Family Program Celebrating World Hemophilia Day 2025!
2025-04-03 18:00 - 20:00 | Meaux Space, 305 7th Ave, 17th Floor,, New York, NY, 10001, United States
We are thrilled to invite you to join us for One Family: A Gathering of Generations, a World Hemophilia Day 2025 generations celebration! The 2025 program will occur on Thursday, April 3rd at 6:00pm!
The 2025 One Family program will focus on the innate ties that bind the bleeding disorders community. The family-friendly event will explore shared experiences, how to forge deeper relationships, and how the power of connection uplifts everyone. We are eager to spend World Hemophilia Day with you and celebrate the unbreakable ties that bring the global hemophilia community together!
Attendees can also look forward to a delicious meal and a craft that will help to create unforgettable memories!

REGISTER HERE !!!

Steven L. Margolies, MD Family Educational Conference
2024-11-01 - 2024-11-03 | Skytop Resort, 1 Skytop Dr, Skytop, PA, 18357, United States
For families affected by bleeding disorders. Held at Skytop Resort, Skytop, PA. Transportation from NYC provided.
REGISTER HERE !!!

Celebración del Mes de la Herencia Hispana- Tarde de Loteria
2024-10-19 10:30 - 14:00 | 134 West 29th St 2nd FL, New York, NY 10001, 134 West 29th Street, 2nd Floor, New York, NY, 10001, United States
Registrese Hoy !!!

Herencia Hispana Evento 1- Mañana De Arte
2024-10-05 10:30 - 13:00 | Hemophilia Association of New York, 131 W 33rd St, New York, NY, 10001, United States

Women’s Self-Advocacy & Self Care Seminar
2024-09-27 - 2024-09-29 | Tarrytown House Estate on The Hudson, 49 E Sunnyside Ln, Tarrytown, NY, 10591, United States
For women and girls ages (13+) with inherited bleeding disorders/carriers registered with HANY residing within the NY State service area including caregivers, immediate family members & spouses of someone with a bleeding disorder.

REGISTER HERE

New York City Football Club vs. Chicago Saturday, August 24th at 7:30 PM Citi Field
2024-08-24 19:30 - 21:30 | Citi Field, 41 Seaver Way,, Queens, NY, 11368

Blood Brotherhood Weekend Retreat
2024-05-17 - 2024-05-19 | Tarrytown House Estate on The Hudson, 49 E Sunnyside Ln, Tarrytown, NY, 10591, United States
Enjoy a weekend retreat featuring educational sessions, activities, and time to share your experiences and connect with other community members. This event is for men 18+ living with rare bleeding disorders registered with HANY.
Space is limited!!!
>>>Register Today !!!<<<

Gene Therapy in Hemophilia
2024-05-05 16:30 - 18:30 | Jade Eatery, 1 Station Square Suite 2, Queens, NY, 11375, United States
Join us for a presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on the gene therapy journey. Findings from a clinical trial will be shared and what they could mean for you. Learn how to get started, what questions to ask your doctor, and hear one patient’s experience.
This event is for those ages 17+ with severe or moderate Hemophilia and their significant other or parent.
Food and refreshments will be provided. Space is limited!
Registration deadline: Monday, April 29, 2024
>>>>Register Today !!!<<<<

Self Advocacy, Independence & Leadership - S.A.I.L.
2024-04-26 - 2024-04-28 | YMCA Camp Bernie, 327 Turkey Top Road, Port Murray, NJ, 07865, United States
Join us from Friday, April 26-Sunday, April 28, 2024 for a weekend full of exciting sessions, activities, and fun at YMCA Camp Bernie!
This program is for teens of the bleeding disorders community ages 13-18. You are welcome to bring a friend, sibling and/or accompanying parent/guardian.
Parents/guardians are not required to attend. There is no charge for this program.
Round-trip transportation will be provided. A bus will be leaving from the HANY office on Friday, April 26 at 5 pm.
Registration deadline: Monday, April 15, 2024
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Visualiza tus Sueños
2024-03-09 10:30 - 13:30 | Hemophilia Association of New York, 131 W 33rd St, New York, NY, 10001, United States
¡Acompañanos el 9 de Marzo a las 10:30 am!

Este taller te ayudará a manifestar tus sueños, deseos y metas para este año en una forma física. Tendrás la oportunidad de crear tu propio tablero de visión. Creamos este taller de motivación para inspirar a nuestra comunidad en enfocarse en lo positivo y visualizar lo que desean o lo que se proponen en cumplir para este año.

También tendremos una representante de CUNY Citizenship Now que nos hablará sobre los servicios de inmigración que ofrecen.

Fecha: Sábado, 9 de Marzo de 2024
Hora: 10:30-1:30 pm
Locación: Hemophilia Association of New York, 131 West 33rd Street, #11D, New York, NY 10001

Se proporcionará almuerzo. Registración para este evento cerrara el 6 de Marzo. El espacio es limitado.

Register .

2023 Steven L. Margolies, M.D. Family Educational Conference
2023-11-10 - 2023-11-12 | Skytop Lodge, 1 Skytop Dr, Skytop, PA, 18357, United States
Join us for our best & biggest program of the year!
The Hemophilia Association of New York will be hosting our Annual Steven L. Margolies, M.D. Family Educational Conference at Skytop Lodge this year. This educational conference is for anyone living with a bleeding disorder registered with HANY residing within the NY State service area. The conference will be a time for relationship centered adventure, strengthening of family and community connections, and education in the areas of nutrition, health, personal development, and advocacy specific to the needs of all those attending. Programs, meals, and rooms are included. Transportation to and from Skytop Lodge will be available.
